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Call to ease Hong Kong patient’s ‘living hell’ with drug subsidy to treat rare disease

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Sufferers of a rare neurodegenerative disease are calling on Hong Kong’s health authorities to provide them with subsidised treatments and an escape route from a “living hell”. The nightmare for Mrs Ho, one of roughly 20-odd Hongkongers who suffer from a condition called familial amyloid polyneuropathy (FAP), began about seven or eight years ago. Using only two fingers, Hong Kong girl types 22-page proposal calling for life-saving muscle drug Swallowing was getting...

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