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New Hong Kong foundation hoping to ease burden on families of sick children as lack of palliative care takes them to breaking point and beyond

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Taking care of a 13-year-old daughter who suffered severe disability due to a rare genetic disease was a difficult job for Joan Chan Sun-fun – doubly so when she had no support. The full-time mother was left as the primary caregiver in looking after the bedridden girl, Chan Wing-yee, who has breathing problems, needs daily sputum suction, and is fed through a surgical opening linked to her stomach. “She’s just like a baby,” Chan said. “She can’t take care of...

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