Patients groups and lawmakers from all sides have urged the government to subsidise drugs for sufferers of four rare genetic diseases that cost tens of thousands of dollars a month.
About a dozen people attended a rally organised by the Alliance for Rare Diseases and the Tuberous Sclerosis Complex Association outside the government offices in Tamar on Tuesday. They submitted a letter to the undersecretary for food and health, Professor Sophia Chan Siu-chee, appealing for help.
Single mother Chi...
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